Understanding the Patient and Caregiver Journey
Situation
Client is developing a new treatment for a rare disease
Client seeking to understand patient and caregiver journey to diagnosis of disease - initial signs/symptoms, testing, physicians involved and timing to reach diagnosis
Solution
Qualitative study executed to identify steps patients and caregivers took that lead to diagnosis of rare disease
Study focused on symptom presentation, physicians and referrals, perceived barriers and recommendations to improve the diagnostic process
OLG implemented x
Outcome
Client and agency utilized data to develop concepts and messaging directed towards caregivers
Client and agency also utilized data to develop educational materials on the disease to increase physician awareness in efforts to expedite diagnostic process
OLG will be performing a follow-up study to gauge impact of concepts and messaging statements